Well let's see where to begin........ The 11Th infusion went OK except they had a very hard time getting the tubing in. Plus Tristan was sick and wasn't feeling well anyways . Which makes things a little harder. He went back to school that Monday and we had some serious issues with the nurse again. I will just say I hope and pray justices is served very soon to her. Which I am sure it will be because I am really ticked and her and so his Tristan's Doctor. I must say if your in the medical field you should do what the doctors ask of you and not take it out on the child. I won't get into what happen but it was not good and MY SON NO LONGER GOES TO SCHOOL THERE!!!!!!!!
Tristan is now being home schooled . Tristan and I love it! WE are using the A BEKA program which I must say I so Love . I am sad that he will miss his friends but the family's that we know will keep in contact with us.
On to to the 12Th Infusion. No the 12Th infusion is not the one year mark. We started infusion the first week in NOVEMBER OF 2008 . This infusion went really well Tristan was still sick from last month he has a infection that doesn't want to GO AWAY. They again had trouble getting the everything started . Finally got it and going, but at least this time he wasn't throwing up on arrival . He's got a swollen throat with visible white pockets that make hard to get rid of. They have test him for everything and say it a viral thing. Which normally for Tristan can take up to 3 months or better to get rid of. We are on month number 2. Plus he still getting sick about 5 days after the infusion which he shouldn't be. They have change his asthma medications to something stronger b/c he didn't do so well on his breathing test. He is also still taking all other medications to. Now that we are homeschooling him it takes some of the worry out of maybe not getting so many infections. Plus if we need to get infusions more often we can or if they need to put the port in .
We were able to take Tristan to see the races the day after his infusion..... He did really well for the first hour and then started having a hard time breathing so we bought a towel and made him a mask cause ding bat me didn't pack that in my bag. He has so much fun! He's always wanted to go and when we tired before he didn't make it but 5 minute's before getting sick and heading to the hospital. I hope we will get to take him to do other things .....
So God Bless Everyone who is praying for my son and family We ARE VERY GRATEFUL!
Please people keep donating that blood and plasma ! You are helping my family. I am very grateful to everyone who has ever donated. God Bless you all in every way!!
