As of October

As of October Tristan's infusions levels got raised. He is such a bright child. He's a real trooper . He has been do good since the increase so they decided to take him off his antibodics that he takes every day since birth. Well it only last 4 days then he strated getting sick so now it's a sit and waiting game until the next infusion to see if he will be ok till the next infusion or if he will stay sick. :( In Decemeber we will have 2 infusions one on the 9 and the 30th. Time is patience but sometimes it seems forever waiting to see if the no antibiotics is going to work . Last time the tried the no antibiotics he only made it 5 days and stayed sick. So he is doing a little better.

update
He only lasted 7 days and they put him back on his antibiotics. He currently still takes them .