Infusion 15,16,17 (DEC, JAN, FEB)

Well the infusions went good. They will keep going every 4 weeks. Now I should be able to get back to details . On every infusions . Now that things are not crazy. Tomorrow I update about the surgery that Tristan had in January. We just had another infusion ON March 5th and we have another one ON March 30th so I will up date those two infusion together since they are in the same month.

So God Bless Everyone who is praying for my son and family
God Bless all the people who DONATE blood and plasma!
We ARE VERY GRATEFUL!
Please people keep donating that blood and plasma ! You are helping my family. I am very grateful to everyone who has ever donated. God Bless you all in every way!!

Merry Christmas & Happy New Years late.

Merry Christmas & Happy New Years Late. Sorry for the late updates. Holidays were great. Now on to infusion updates.

Wow where did time fly???

Wow, Where did the time go. Has it really been since November since I posted last?? I will be posting and catching up very soon. There has been a lot of things that have happened on my end. Life has just been busy. This year fingers crossed I should be able to update while where at treatments or later that day! As long as everything keeps going on track.

13th & 14th Updates WOW It's been 1 yr

Well where to start. Lets See. The top picture is from his 13Th infusion. Boy was that a day . The bottom picture was from his 14Th Infusion which was his 1yr mark. Now I know some of you are going that 14 infusion in 12month period. Yes That is correct there were two months that me got 2 infusion because we got them every 4 weeks. Tristan has grown so much this last year. This year alone we have went Thur a lot.
We are now Homeschooling Tristan. It is helping keep his infections down some which is a plus. We are talking with the doctors about doing surgery on his throat. I will keep you updated on that b/c that can be dangerous. Will get into that once we cross that bridge. He is still taking all the same medications to. He will continue to have his infusions every 4 weeks like clock work.
Please continue to Donate that Blood and Plasma !

Number of Donors who have helped my family in 1 year: 630 Different People God Bless All 630 of you

So God Bless Everyone who is praying for my son and family We ARE VERY GRATEFUL!
Please people keep donating that blood and plasma ! You are helping my family. I am very grateful to everyone who has ever donated. God Bless you all in every way!!

Oct and Nov updates coming soon!

I will be updating the October and Nov updates together. Nov is our 1 yr Anniversary of the infusion which will be this week. God Bless !

Tristan's 11 & 12th Infusion updates!

Well let's see where to begin........ The 11Th infusion went OK except they had a very hard time getting the tubing in. Plus Tristan was sick and wasn't feeling well anyways . Which makes things a little harder. He went back to school that Monday and we had some serious issues with the nurse again. I will just say I hope and pray justices is served very soon to her. Which I am sure it will be because I am really ticked and her and so his Tristan's Doctor. I must say if your in the medical field you should do what the doctors ask of you and not take it out on the child. I won't get into what happen but it was not good and MY SON NO LONGER GOES TO SCHOOL THERE!!!!!!!!

Tristan is now being home schooled . Tristan and I love it! WE are using the A BEKA program which I must say I so Love . I am sad that he will miss his friends but the family's that we know will keep in contact with us.

On to to the 12Th Infusion. No the 12Th infusion is not the one year mark. We started infusion the first week in NOVEMBER OF 2008 . This infusion went really well Tristan was still sick from last month he has a infection that doesn't want to GO AWAY. They again had trouble getting the everything started . Finally got it and going, but at least this time he wasn't throwing up on arrival . He's got a swollen throat with visible white pockets that make hard to get rid of. They have test him for everything and say it a viral thing. Which normally for Tristan can take up to 3 months or better to get rid of. We are on month number 2. Plus he still getting sick about 5 days after the infusion which he shouldn't be. They have change his asthma medications to something stronger b/c he didn't do so well on his breathing test. He is also still taking all other medications to. Now that we are homeschooling him it takes some of the worry out of maybe not getting so many infections. Plus if we need to get infusions more often we can or if they need to put the port in .

We were able to take Tristan to see the races the day after his infusion..... He did really well for the first hour and then started having a hard time breathing so we bought a towel and made him a mask cause ding bat me didn't pack that in my bag. He has so much fun! He's always wanted to go and when we tired before he didn't make it but 5 minute's before getting sick and heading to the hospital. I hope we will get to take him to do other things .....

So God Bless Everyone who is praying for my son and family We ARE VERY GRATEFUL!
Please people keep donating that blood and plasma ! You are helping my family. I am very grateful to everyone who has ever donated. God Bless you all in every way!!

Update!

I will be updating very soon about Tristan's 11th infusion! There is alot of things I need to figure out how I want to put it out there.