Monday, March 26, 2012

Days turn in to months turn in to years!

You know something ?? For the life of me I can't figure out where are my time goes. I am always busy doing stuff for other and my family but rarely have time to breath let alone think. Then when I try to think of something , usually when it's time to sleep my mind just thinks about 50 million things. I think I am need of a Vacation ! HA , yeah right I don't have time for that. Between cleaning house , homeschooling my son, fixing meals , laundry that's never ending I barley get time to breath . Oh and taken care of extended family to. I swear I sometimes feel like I am pulled in every direction but the normal one. I am finally starting to feel my energy return after many many years of it being gone. How is this possible? Lack of sleep! I got a new bed ! It's a sleep number and let me tell you I can actually sleep which is nice! I haven't slept more then a couple hours at a time since I was a very young child. After years like this it will catch up to your body / muscles. I like waking up feeling refresh instead of sleepy. Was the best purchase I could every make . Anyone who thinks Sleep Number is expensive it is but well worth the investment. It's been a good few months for Tristan. He still gets his infusions every 28 days. He's only been sick a couple of times. WHOO HOO! Sometime I will be writing a post of what most people don't understand about having a sick child or what you actually give up . Anyone who thinks its a piece of cake I ask walk a day in my shoes and think with my brain. What is normal anyway ?
Oh Yes < I almost for got! I am so very proud of my daughter! She won an ESSAY Contest over VFW Patriot Pin. She won for our county. She is one smart cookie.!
Well till next time .................

So God Bless Everyone who is praying for my son and family We ARE VERY GRATEFUL!
Please people keep donating that blood and plasma ! You are helping my family. I am very grateful to everyone who has ever donated. God Bless you all in every way!!


Thursday, January 26, 2012

Soon

Soon I will be writing a post that is About how I feel! Plus All the questions I get asked. I am trying to write it now so people will understand it. I just hope they actually get it!

Thursday, January 12, 2012

Bring on 2012

Well It's a New Year!! Hopefully this year brings lots of new things. I am going to try to update more often . I even put on my calendar with an alarm to go off so we shall see if that works.

Tristan is still getting infusions every 28 days. The hospital switch to a different company for the blood infusion which cause all the kids to have the exact same reaction/side effect to. So now there back getting the normal makers of the infusion. Thank Gosh too! The side effects were not good at all. Plus it seemed like Tristan was sicker then usual with that brand . It's been a interesting couple of months to say the least and Tristan has lots of sick down time. I hope this is the start to a better year of things to come.

Sunday, November 20, 2011

As of October

As of October Tristan's infusions levels got raised. He is such a bright child. He's a real trooper . He has been do good since the increase so they decided to take him off his antibodics that he takes every day since birth. Well it only last 4 days then he strated getting sick so now it's a sit and waiting game until the next infusion to see if he will be ok till the next infusion or if he will stay sick. :( In Decemeber we will have 2 infusions one on the 9 and the 30th. Time is patience but sometimes it seems forever waiting to see if the no antibiotics is going to work . Last time the tried the no antibiotics he only made it 5 days and stayed sick. So he is doing a little better.

update
He only lasted 7 days and they put him back on his antibiotics. He currently still takes them .

Thursday, October 6, 2011

Time Rewind to Current

Well Tristan's medical is all still the same ! We still get infusions every 28 Days like Clock work . He is still being Home Schooled. We use A Beka school system the last few years , This year we are still using A Beka but we are doing the Academy side . Which is an actual school in Florida and he now has a Teacher and class room . So far we love the system!.


I promise I will try to be a better blogger :) & not make my post so many months apart!

So God Bless Everyone who is praying for my son and family
God Bless all the people who DONATE blood and plasma!
We ARE VERY GRATEFUL!
Please people keep donating that blood and plasma ! You are helping my family. I am very grateful to everyone who has ever donated. God Bless you all in every way!!

Time Rewind Knitting !!!





Well I have been Knitting and making a ton of things. I knitted more then the pictures I am posting but this will give you a taste. I did knit a shawl for Anika to which I will have to find ? It has disappeared from my computer:( I know why so many people love to knit baby items they are very easy and much quicker then knitting an adult sweaters. Now the socks pictured above were knitted by I think Connie I just made the yarn everything else I made for some very special baby's ! They are all super stylish kiddos . Right know I am knitting some socks for my husband's Aunt and a Sweater for my self !

Time Rewind Anika's Cancer Benefit




So you all remember me talking about my friend Anika who was very young (36) and has/had Breast Cancer! Well I am very happy to say she is now Cancer FREE!! Thank you god!! The pictures above are Cupcakes that I made for her benefit I did make over 400 of these yummy things. They were all dairy free and egg free:) They were a hit and I hope they were able to make a lot of money :) The flavors by pictures are as follows the First picture Flavor was a Chocolate Strawberry cake with a Strawberry Frosting :) the Second picture Flavor was a Butter Cream cake with a Rum Frosting ;) the Third picture flavor was a Pumpkin Spice cake with a Cinnamon Maple Frosting :) Did I ever tell you I love to Cook! It was for sure a sea of cupcakes but Oh SO YUMMY!!!! I love you (like a sister) Anika and I am over joyed that you are Cancer FREE!