Merry Christmas & Happy New Years.

Well I hope you all are doing very well! We had a wonderful Christmas and Good New Years.

Tristan is still getting infusions every 4 wks like clock work. In Decemeber we had some urinary isssuse and some Renal issuse both lead to going to specialist. I tell you it's Januray and we are still having appts every week . (2x a week) . They are trying to figure out whats going on in his body but I will get into all that after January when Hopefully they figure it all out!


Thank you god for another year with my son! Thank you god for all the doctors who are very brilliant to figure it all out !

So God Bless Everyone who is praying for my son and family
God Bless all the people who DONATE blood and plasma!
We ARE VERY GRATEFUL!
Please people keep donating that blood and plasma ! You are helping my family. I am very grateful to everyone who has ever donated. God Bless you all in every way!!

Make A Wish Trip!

Here are some Pictures of our Make A Wish Trip for Tristan. I will blog when I feel better and my head isn't pounding a way. I will tell you that I that we stayed at the most magical place in the whole wide world. It is called Give Kids The World! http://www.gktw.org This place survives by donation so I ask if you have change to spare please donate to this place. It's only for wish granting children. God Bless Enjoy! I will be telling the story of Give Kids the World very soon!

Listen People

Let me tell you women WHO think it can't happen because your not old enough. I will tell you that Breast Cancer can happen to all WOMEN and ALL ages. My Lovely Friend ANIKA is 36 , She was just diagnosed. This is one of those women is is very amazing and very strong. She has 3 Children. I ask that all you pray for her family ! She will beat this Cancer !
To all those all over the world that pray for my son please Pray for Anika and her Family!

Rewind Time!

So I know I haven't blogged since before June. Well there has been a lot that has happened. Lets Start in June . My dad passed away on June 16th, he was the young age of 51! I being the oldest got all of the responsibility of taking care of everything. Well we took Tristan for family visitation at the wake (Sunday)for 1 hr. Then we had my husband's parents come pick him up. By 2am Tristan was very sick and stayed sick . His infusion wasn't until the end of the week and he was getting sick and staying that way. Well infusion day finally came and thank goodness, but by this time he was really in bad shape. After Dr.K examined him he decide that they need to raise Tristan's infusion level to  hopefully help him get better. Mind you this whole time I feel HORRIBLE ! I took my son to my dad's wake for just 1hr during family time and it resulted in him getting a larger dose of infusion levels PERMANENTLY! I though my son should say goodbye to his Grandpa , boy was I wrong! Never AGAIN! I took about another week for him to start to feel better. This was June Infusion.

JULY -- Was a very busy time trying to run around and get all my dad's business taken care of, and getting his things prepared . I was barley home it seemed like . Thank gosh my husband was able to be with Tristan and Lilly. Well with the large dose of the infusion more things start to happen .. We noticed that the week before Tristan's July infusion he started getting extremely tired and his whole body hurt , plus all his energy is drained. I know that more things happen to him the large the does goes. As of June we are at a 1 and 3/4 of a bottle . Which is really really close to the 2 bottle max. Which worries me .
Some good things did happen in July! Seemed like every time I was at my Dad's house cleaning it out my cell phone would ring. Make-A-Wish would call me to tell me that Tristan had been approved for a wish. They also said they would be in touch very soon. Couple weeks went by and I was back down at my dad's and they called again to schedule a time to come meet with Tristan. The other good thing that happend was the Dr. K . walked in a said "let's take Tristan off his antibiotics and see how he is plus I want you to expose him to some people" I say " after what we just had happen last month are you CRAZY!" Dr.K " You can yell at me if it doesn't work! We need to see if him being on the large dose of the infusion is going to be able to take him off his antibiotics. This will also tell us if he will ever be able to come off them." my response" o.k. he's been on those since birth. I trust you but if get sick then what happens ? Does the infusion level go up again ? " Needless to say two days after his infusion we took him to Six Flags he last 4hr and started feeling sluggish so we left. I will say the park was pretty empty. After the next day Tristan seemed fine . Which was great. Couple days later he was sick and stayed sick!

August -- Infusion came and the experiment was over Tristan was put back on his Antibiotics permanently! Unless they think they want to try it again . Tristan also started 2nd grade in his home school program. Tristan was also sick all month long he had something wrong with his eyes that they couldn't figure out what type of infection it was along with a bunch of other things.

September -- Infusion went as normal and things started to finally look better .. or so we thought. Tristan was test for his Cholesterol in August and we got the results in September. His bad Cholesterol is way way to high over 200 in the upper 200 and his good Cholesterol was below 30 . Tristan has been having chest pains again to so we are will be going back to the Dallas Heart Center and to the LIPID heart Doctors over the next couple of months. They will be testing him for the heart condition that my father had just to be safe. Good news in September Tristan got to meet with the wish granters to find out his wishes. It was a very surreal moment. You never know how your going to feel. I have very mixed emotions about all of the stuff with Make -A-Wish! A couple weeks later we find out that Tristan's wish to go to DISNEY WORLD will be granted. In November we go to DISNEY! We will be staying at GIVE KIDS THE WORLD which isn't for the general public. It's for wish granting organizations . Tristan can't fly so we will be driving out to Disney.
Well thanks for being patient and listening to are life in rewind short version style. God bless !

 God Bless Everyone who is praying for my son and family

God Bless all the people who DONATE blood and plasma!

We ARE VERY GRATEFUL!

Please people keep donating that blood and plasma ! You are helping my family. I am very grateful to everyone who has ever donated. God Bless you all in every way!!

July and August Infusion !

They both went OK. I am just know getting things back in order. It's been a rough couple of months . Hopefully once I get back into the swing of life (Which should be very soon Sorry) I will make a very long post. Bare with me just a little longer :)

God bless everyone !

Huge update coming up!

Hello, Everybody I will be doing a huge update coming up soon. Tristan is having an infusion today July 23. He also had one in June Which we now get a larger dose of the infusion now. I will explain all that in the update. It's been crazy here . MY dad passed away as well as all kinds of other things!

I will be back to post soon

Infusion Updates

Infusion Updates coming soon for April and May! There have been no changes in anything . So I will be updating soon. Were trying to finish up his homeschooling work then I should have some time to type everything up .

God bless everyone:)

Thanks for your blood donations and all your prayers !!!!!!