Well I must say it has been awhile since I have posted on here. But to my defense my family has had a extreme amount of thinks happen very fast and quickly. So grab your cup of java and have a read.
Well the day before Halloween we got a pretty upsetting phone call from my son's specialist. He told us that my son was going to have to start Immunoglobulin Blood Infusion treatments every 4 weeks. Which no one on earth wants to hear, right. For those who don't know . My son doesn't develop antibodies plus he has some but they are very low, and he also has extremely low b-memory cells. He has been like this since birth. In the beginning of getting him help the told us we wouldn't have to do this treatment unless we ran out of options. Plus they also told us we would only need one treatment and it would fix him that it was very affective. Meaning he would take it well and then he wouldn't have to take any more medication. But when they called that wasn't the case . They told me my son would have to take the blood infusions every 4 weeks like clock work and he would have to still stay on all his medications. I felt like I had just been shot. My heart sank to the floor and I felt everything around me spinning. Once I got my brain back in place I started doing and preparing for everything I need to do. Up in the picture that little tiny bottle that is clear is what he receives. It take half of the day to put in him plus the blood is so darn thick that it won't move in the bottle. That tiny bottle is expensive to. It's cost is $20,000.00 per bottle. No that isn't a type-o either. The final bill for one treatment is almost $60,000.00 . Yes my insurance is paying for now or at least till march of this year. I would have never imagined that it could be that much. So god if your listening 1. Cure my Son. 2. If it is meant to be this way then keep providing my insurance to cover the cost.
The first treatment was in November. We are now going on treatment number 3 this Friday. The first treatment he did great for about 2 weeks and and then all hell broke loose. He has been sick with infection after infection since then. and we have also had another infusion but it didn't seem to do much. He is still even taking his antibiotics every day , But his infections don't seem to be going away. I sure hope they do something when we go on Friday. He's just miserable. So if your out there say a pray or two for my son. Thanks for letting me vent God Bless You ALL !!
1 comment:
Will keep him in my prayers...going to write it in my prayer journal now!
hugs
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