Tristan's 5 th Infusion.

Hello everyone. Well we had our 5Th infusion. Tristan wasn't feeling to good so he went in his pajama pants this time. We didn't have to have the scope test done. Even though I still think they should do it on his throat. We are going to try a medication for the acid reflux . If it doesn't work then we will go into more testing. The did add 6 more medications on top of the several he already takes. He has been getting very short of breath and not being able to breath if he runs about 10 to 15 feet. So they are treating that as really bad asthma. Which normally doesn't flare up unless he really sick. Now it's all the time. So something new to watch out for. I really hope this is all like that old saying THE ROUGH TIMES BEFORE THE CALM OF THE STORM or THE MADNESS BEFORE THE PEACE. This kid is super miracle. His spirit is like that of and old brave warrior. Even the doctors think this they said out of the case they have ever seen my son was like no other and that he was a puzzle. Tristan has had things happen that they have never seen before. Please people keep donating that blood and plasma! You are helping my family. I am very grateful to everyone who has ever donated. God Bless!