Thursday, May 7, 2009

Tristan's 7th Infusion




Let's see where to start. Well Tristan has been sick since the 10Th day of his 6Th infusion!! So he didn't get to come off the antibiotics . They doubled his antibiotics to help get rid off the infection:( Well many things have now changes as well. This infusion was on April 24Th,2009. The next one is on May 19Th,2009. Well lets just dive into it. Basically they told us that after he gets over the infections he has now then we will go back to the normal medication levels and then we will see how many days after the infusion it takes him to get sick . Since we started this whole process it usually 10 days or less after the infusions and every other month. It's only every other month because those odd months he's put on double medications and stronger medications for 30 days to get rid of the infections. With out that he wouldn't get over them. So once we determine how many days it takes him to get sick then the doctors will decide if we need to start having the blood infusions every 2 or 3 weeks instead of every 4 weeks like we do now. If this happens then everything will change again. They are doing everything they can to try not to bump up his blood levels. He's already only 25% away from the Max. levels of blood and it's been this way sense the 2ND infusion. Once he hits the Max. (which hopefully he will not) then he will switch to having this for the rest of his life. They almost went ahead and bumped him up on this infusion but with talking and trying to figure out some things they decided to try seeing how long it will take for him to get sick after the infusion on May 19Th. Unless he still is sick by May 19Th then it will all change once again. So today is May 7Th and currently still sick but looks like he's finally starting to get better over this week. They also said scratch the June 2010 date to Now they said they really can't give us a official date anymore because to many things keep changing it . The doctors also said Tristan is like a puzzle and that everything that has ever worked or with this treatment is either not working or doing something totally different on my son then it has on others. I still have hope that my son will have his miracle and god will provide for us. So God Bless Everyone who is praying for my son and family We ARE VERY GRATEFUL!
Please people keep donating that blood and plasma! You are helping my family. I am very grateful to everyone who has ever donated. God Bless you all in every way!!

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