Wednesday, January 7, 2009

Thank You Blood and Plasma Donors


First off I would like to say that went to have my son 3rd infusion on Jan 2 and we didn't get to have it. The blood shipment hadn't arrived yet . So we finally got it yesterday on Jan 6 . But on Friday I learn some scary but great news.


I had asked why the didn't have any blood for the infusion. I explained that if we need to supply the donors then please tell me now and I will get everyone in line. The next new about left me on the floor. They told me that for every 1 bottle of stuff my son receives it take 25-30 people(more closer to 30 people) to make 1 bottle and then take another 6-8 months to get it to where it can be used for him. I then was told that it's the blood and plasma both .(different donors for each) Plus only one company that turns the blood and plasma into the blood immunoglobulins that get infused into my son. Long story short God Bless the Donors


I mean I thought I was OK with coming to terms with 1 person being injected into my kiddo . Especially after being told it couldn't be one our bloods . They assured me it was totally safe. Which in my heart I know that . But with the new information. Lets do the math. My son last treatment they had to up the bottles. So he now gets 1 full bottle and a 1/2 bottle. Plus they up all his medications to.
So I have calculated how many peoples have been injected into him since we started. Are you ready? ( I about hit the floor my self)
105 people my son has been injected with in 3 visits. Now tell me if that doesn't scare the hell out of you? For those that don't know we go every 4 weeks Next treatment is Jan 30th.
So I would like to take the time TO THANK ALL YOU PEOPLE THAT DONATE BLOOD AND PLASMA. PLEASE KEEP DOING DONATING . THERE ARE CHILDREN THAT YOU ARE HELPING. I HOPE GOD BLESS YOU IN EVERY WAY IN YOUR LIFE. THANKS FROM THE BOTTOM OF MINE AND MY SON AND FAMILY'S HEART. GOD BLESS YOU ALL!!!
Picture above is taken Jan 6, 2009 Daddy and Tristan playing Mario brothers to pas the time during the treatment. (take almost all day to do)

Thursday, January 1, 2009

Goals for 2009

1. Exercise every day!!
2. Try more knitting for my family instead of for other people.
3. Get my Yummee Yarn Store stocked with beautiful yarn.
4. Have 2 sock giveaways in the first half of the year.
5. Have a miracle happen for my son.
6. Buy more yarn when I can.
7. Make my self a sweater (it will be the first on for me)
8. Make my Kids new socks.
9. Remember to take pictures of what I actually knit before I give it as a gift.

Other wise Happy New Years to all.

Yes Yes on to the Knitting!!


I took the pattern that Cat Bordhi wrote called the Mobius scarf. She also did this pattern on the T.V. show Knitty Gritty. I made it out of Malabrigo Yarns in colorway Apple Green. I used size 10 needles. I also use 1 full skein and 1/2 skein. The pattern calls for you to cast on 80 stitches I casted on 160 stitches, plus I did 4 0r 5 more repeats before starting the lace edge. It turn out really well. I totally love the cast on method that she uses to . If I do another mobius I will be using that cast on. This women is has such a brilliant mind. In 2009 I plan to actually sit a read her New Pathways for the Sock Knitter. I have had this book since it came out but haven't touch it. I know shame on me.

Clear High top Converse shoes!!

Hey all you sock knitter did you see the new Converse clear high top shoes . Plus the now also have the pair like I got for my birthday but now they glow in the dark to. Hurry go check them out there all under $60.00 here's the Link

http://www.journeys.com/catalog_detail.aspx?ID=89095

I can't gank a picture so just go to the link

Man where did the time go?


Well I must say it has been awhile since I have posted on here. But to my defense my family has had a extreme amount of thinks happen very fast and quickly. So grab your cup of java and have a read.


Well the day before Halloween we got a pretty upsetting phone call from my son's specialist. He told us that my son was going to have to start Immunoglobulin Blood Infusion treatments every 4 weeks. Which no one on earth wants to hear, right. For those who don't know . My son doesn't develop antibodies plus he has some but they are very low, and he also has extremely low b-memory cells. He has been like this since birth. In the beginning of getting him help the told us we wouldn't have to do this treatment unless we ran out of options. Plus they also told us we would only need one treatment and it would fix him that it was very affective. Meaning he would take it well and then he wouldn't have to take any more medication. But when they called that wasn't the case . They told me my son would have to take the blood infusions every 4 weeks like clock work and he would have to still stay on all his medications. I felt like I had just been shot. My heart sank to the floor and I felt everything around me spinning. Once I got my brain back in place I started doing and preparing for everything I need to do. Up in the picture that little tiny bottle that is clear is what he receives. It take half of the day to put in him plus the blood is so darn thick that it won't move in the bottle. That tiny bottle is expensive to. It's cost is $20,000.00 per bottle. No that isn't a type-o either. The final bill for one treatment is almost $60,000.00 . Yes my insurance is paying for now or at least till march of this year. I would have never imagined that it could be that much. So god if your listening 1. Cure my Son. 2. If it is meant to be this way then keep providing my insurance to cover the cost.
The first treatment was in November. We are now going on treatment number 3 this Friday. The first treatment he did great for about 2 weeks and and then all hell broke loose. He has been sick with infection after infection since then. and we have also had another infusion but it didn't seem to do much. He is still even taking his antibiotics every day , But his infections don't seem to be going away. I sure hope they do something when we go on Friday. He's just miserable. So if your out there say a pray or two for my son. Thanks for letting me vent God Bless You ALL !!